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Vulvydinia and Lichen Sclerosis
You want to know why no one knows or has answers to this and no cure...because these two are the result of multiple underlying issues.....keep reading Ok..so after 2 years of build up of itching, treating twice for my own yeast infection. (I've only had 3 before in my life) the itching got stronger and felt more like electrical impulses I had to address with mineral oil and a major scratch session. My labia started to look shriveled and it became sore and painful. Sometimes there were tiny hard nubs near the surface of the labia. I finally booked an appt. Dr. took only ONE look and said "Jock Itch"...which made sense..I never had it before...and this was a different type of itch from your standard yeast infection.....well... it wasn't jock it. I was treating for it for a month. After the second week she changed the cream. Still no effect...getting worse now. On this same visit (the first) I notified her that I did not think it was a yeast infection because no disharge and the itching felt very different...more like bugs crawling and biting you. Clitoris to anus. I also developed later a lot of body itching. I would be laying there and it felt like a fly landed on my leg or arm. I went back in. She was saying yeast infection now. Meanwhile she never took tissue samples or took tissue to a lab. Diflucan for two months! Nothing..getting worse. I'm using whatever I can find to alleviate..olive oil, vicks vapor rub, mint scented creams. (The mint would trick the nerves and the itching would temporarly lighten) Ok..so the next visit - cortizone creams and lidocaine cream. They did some improvement but after 2 weeks..it came back..with a vengeance. So.... I find another doctor through recommendation (in NYC) - an old skool guy. he is so old skool he accepts no insurance. He did take approx 8 tissues samples and in the same room tested for various virus and bacterial infections right in front of me while my legs were still up. He had a microscope RIGHT ON THE COUNTER in the exam room. I got to take a look and he explained everything he was doing and why!!! Gave 4 vials of blood. He is checking hormone, thyroid, iron (too much too little) everything. I will find results on these in a few days. So here is it!! DRUM ROLL PLEASE..... Some mild yeast AND....continue drum roll... Gardnerella Bacteria!!! it is a highly mis diagnosed bacteria. and why??? No friggin microscopes in the Dr's offices!!! Now hear this. He says..you cannot treat one or two things. There is a reason why you were not able to fight off these two bacteria. It's a whole system that got out of whack for various reasons!!! It's compounded! I was flabbergasted..I was immediately flashed back to the 70s! A time when logic and science was something that doctors worked under. When I had explained all my troubles earlier and how she just looked and said "jock itch". HE WAS LIVID.."you cannot just look and say yeast or jock itch" it has to be thoroughly TESTED and PROVEN! Then he just shook his head in disgust. Ok..he was a really sweet guy..so it sounds like he was mad..but I think it's frustrating from his point of view. You could tell. I'm waiting for results on Iron, Thyroid and other things he going to take hard look at. I was given a special cream that only ONE chemist in Manhattan makes from his own recipe. It is a steroid cream. He will also not prescribe prednisone..he has a milder form and one other antibiotoc for the gardnerella - specific- After the first 24 hours of starting treatment..my labia looks almost back to normal. The itching is now much less frequent at the 24 hour mark..and I accomplished so much the next day!!! Also note..I had a bad infestation. My legs were retaining water and I started to have a rash on my high inner thighs. I big skin sensitivity was brewing. Apparently, it behaves like a virus injecting itself into your cells. The cells become infected and the bacteria multiply and infect other cells. (Inclusion) You cannot screw around with this. Demand or find a doctor that has a microscope and demand he test for gardnerella while you are there!!! If you want the name of this very special doctor (nice older man) who is very thorough in his exam - he does "everything" including colon cancer screening while you are there. Ask in this forum for it and I will try to reply soon. GO!!!! |
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