Thanks Gina,

Life is rather strange really and its only been in the past few years that I feel I've branched out a little and become more open to aspects which previously would have seemed unscientific and implausible. Funnily enough, it's been happening on several levels, not just as regards my approach to my physical disease, and it probably really began about 10 years ago, when I had a couple of paranormal experiences I couldn't easily explain to myself.

Where I really struggle though, is in my explanations to others, my family, other patients, the clinicians I still see for blood tests etc etc. I don't feel as though I'm out of the woods yet & I don't want to be challenged over my decisions (although of course they think I'm mad & I ought to be challenged!) It's sort of been a fight justifying them to myself (probably because I am going against my education here).

But anyway, I'm happy with my homeopathic treatment and feel I'm on the right path. So although I'd like to compare notes I don't want to make any changes there.

The charity website doesn't represent my personal views, rather mainstream medical opinion plus that of the clinical advisors of the charity. I think that, over the years, my own personal goals have diverged, at first just a little, but now quite widely, from those of the charity. It's reaching the stage where it might be more appropriate for me to "come out" and start an alternative website.

I no longer take any OTC medications, no prescription drugs. Just homeopathy plus a little help from chi kung (the healing form of tai chi). It's probably true that I have always been a fearful person, probably also an angry one (liver problems too) and I'm working on these emotions too. Many of my own beliefs and much of my own approach to healing is completely missing from the charity website.

I'll see where this all takes me, though. My impression is that in, say, another year from now the gap between myself and the charity will be so gaping I'll not be able to ignore it any longer and our paths may well have parted.

Dear Jennilee
I totally understand where your comming from. First as a patient,now as a homeopath the "daily" struggle to explain the incredible powers of homeopathy never ends.There are reasons for everything,In my case the ailing kidney problems opened my eyes to holistic healing. If i were super healthy all mylife i'm sure i would not care about alternative methods of healing/health/lifestyles.As they say......"ignorance is bliss".........
My gift has always been my obstinant personality,i'm extremely determined,nothing gets in my way. Many visits to many conventional hospitals debating allopaths on the toxic effects of prescription meds.
"knowledge is power"...............so the more you educate yourself regards alternative healing the more power to heal..........less fear...........less intimidation.
I'mglad you are under homeopathic care.
I think its a good idea to start a forum for homeopathic patients,as an addition to the charity why not combine both ,introduce homeopathy into that website.
Gina Tyler

__________________
"Great ideas often recieve violent opposition from mediocre minds"...................Einstein

Hello again,

Well, we'll see how it goes. I think I need to gain more knowledge and see my own health improve further before I'm in a strong position to debate with clinicians or take a leading role in a new group. I do, however, have a clear idea of what I'll do as & when I'm in that position and for this reason it surprises me that there seem to be no PKDers already doing this. Surely someone out there must be further down the road than I?

As for the charity website, although I started much of this, it now has a life of its own - out of my hands and "owned" collectively by the trustees. Now, I am still a trustee and my opinions do count, but I need firm evidence to back them up. Can't afford to be at all "wobbly" on any of the issues as I would be taking on established healthcare plus patient groups who firmly believe what they've been told.

Now if I had several cases of homeopathically treated PKDers with blood pressure measurements showing a clear reduction, stable kidney function over a protracted period, reduced or stable kidney/liver cyst size as evidenced by ultrasound scans etc etc, I would be on more solid ground. One reason why this might be difficult is that PKD typically progresses very slowly over a period of years rather than months - this means it might take a while even to realise that things are stable! And since I'm finding it well nigh impossible to find a single like minded PKDer it makes it even more problematic.

However, I'm determined to keep going and hopefully the rest will unfold over time. So.... Lots of issues, really, and am hoping that other patients (not just PKDers) will be able to help, or at least offer some encouragement from their own experiences.

more info on Dr. SK Banerjea on this website you can find hundreds of cases.(click on the top- right side"cured cases")
www.homoeopathy-course.com
he has clinics both in the UK and in India
Seminars all over the world
comes from several generations of classical homeopaths

Gina Tyler

__________________
"Great ideas often recieve violent opposition from mediocre minds"...................Einstein

MORE CASES
by a homeopath called Deborah olenev

http://home.att.net/~olenev/articles11.htm
Christina and her Daughters with materia medica of Carcinosin.

Enjoy

Gina Tyler

__________________
"Great ideas often recieve violent opposition from mediocre minds"...................Einstein